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I am reaching out to those with DISH
Spine Health | Last Active: 4 days ago | Replies (53)Comment receiving replies
Hi
Dont normally come on Connect, but saw DISH and thought I would peek as someone who was diagnosed with it myself 3 years ago. I have had 4 cervical spine fusions now, 2 3 years ago and 2 more about 3 months ago. My neurosurgeon at Mayo Clinic expects to clear me for a different surgery in a couple of weeks at a follow up appt. The 2 surgeons involved in the next one(s) are disagreeing about timing. Incisional hernia guy is good to go with the neurosurgeon's recommendation; another who has to do something else in the same area that can and would normally be done at the same time is saying he wants me 6 months out from the most recent fusions. How long did you have to wait post fusions to be put under please? They each tell me they want to be sure enough healing has taken place for the spine to be stable to intubate me, but none of said it will be a problem nor has the neurosurgeon suggested that if I have to have more fused that I could not be put under, but will confirm that. Both times I have had the fusion surgery, he has removed osteophytes though they dont like to because they grow back. But one was so large, it was making it hard to swallow and I was losing my voice.
Replies to "Hi Dont normally come on Connect, but saw DISH and thought I would peek as someone..."
@tallyteresa
Thank you for posting as I'm here to see if there is some information to help my husband who is newly diagnosed-also cervical with concerns of bone spurs and growing into esophagus. Thank you for sharing your surgery hx and the disagreements with providers is a good heads up. I've read a bad outcome with osteophyte removal and glad that you had a better result.
Can you share which MD you see at Mayo? Your experiences? Suggestions? We are considering if we should go there or local care. We've been seeking out latest research, trials, anything that may lead to a way to slow down progression, along with supporting your body at the cellular level.
He was diagnosed from xray at chiropractor and wondering if next step is Rheumatology, CT scan, MRI as a herniated disc with nerve compression an possibility.
We are in the first stages of learning and sorting out a path.
Thank you kindly and thinking of you and your recovery!
Connect
I'm so sorry to hear about your condition.
Unfortunately, the quickest time between a fusion (my 4th level, with a laminectomy) and being put under with a full tube situation was about a year.
And the surgery that had the anesthesia a year after my last fusion was a nerve stimulator implant, so not a terribly long complicated procedure.
The biggest issue, I find, is differing opinions between different branches of medicine on when it's OK and when you should wait.
I try to tell myself they are erring on the side of caution, but when you are the one needing treatments and surgeries, you do tend to be a bit less patient.
Best of luck. I sincerely hope you get some relief, and some piece of mind, as anesthesia could be a big something down the road.
Best of health in '25!