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@markduran

Hi there, I'm Mark. I've been experiencing polyneuropathy since a head injury 9 years ago. It finally got real bad in April last year, along with muscle cramps all over, arthritis in my hands and feet and tendonitis everywhere in my arms hands, and feet. I'm in constant pain from the bones on out, my muscles are constantly twitching or cramping, and I'm numb to above my knees and up to my elbows. Electroconductive tests in October showed demyelination and axonal polyneuropathy. I'm desperate for an appointment at Mayo, where I am a cardiac, pulmonary, and hepatic patient, but Neurology doesn't have space. Banner, where I'm also a cardiac patient, doesn't have any appointments either. And there is nobody in New Mexico, where I live, who I can see either. I'm hosed, frustrated, and want to just lay down and die. Sorry, but that's how I feel today. Hopefully, tomorrow will be better.

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Replies to "Hi there, I'm Mark. I've been experiencing polyneuropathy since a head injury 9 years ago. It..."

Hello @markduran, Welcome to Connect. You certainly have a lot going on which must make it extremely difficult to deal with. I'm sorry to hear that you haven't been able to get an appointment with Neurology. I'm not sure if it might be an option for you but Mayo Clinic also collaborates with hospitals that are in the Mayo Clinic Care Network and I see that CHRISTUS St. Vincent is a Care Network member - https://www.christushealth.org/locations/st-vincent?,
Here's a complete list of the member hospitals - https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members.

Have you looked into a pain rehabilitation center?

Hang in there Mark! I totally get the last part about giving up. Talk to someone if the depression gets too bad. I'm thinking about that myself...good days and bad, but there are a lot of people out there much worse off.