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Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (3)
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Welcome @wren1003, @nancy53 mentioned a PMR & GCA Facebook group that had a zoom meeting in another discussion but I haven't seen one here on Connect. There are quite a few different discussions in the Polymyalgia Rheumatica (PMR) Support Group if you would like to look for discussions on a particular question or topic related to PMR. Here's a link to the list of discussions in the support group - https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.
PMRGCAuk has an online support group that holds online meetings the 4th Wednesday of the month and open to everyone - https://pmrgca.org.uk/online-support/.
How long have you had PMR?
Replies to "Welcome @wren1003, @nancy53 mentioned a PMR & GCA Facebook group that had a zoom meeting in..."
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Thank you John.
I was diagnosed with PMR in late December 2023. I was put on 20mg of Prednisone in January 2024. Happy to report that I am at 1.5mg as of a week ago, not without some pain, but completely tolerable.
Diet, exercise, and mindset have enabled me to carry on reasonably well. Yoga and swimming were a God send at the beginning.
This support group has been another source of great strength for me. The information and fellowship shared has made PMR not quite so scary.