← Return to Living with Neuroendocrine NETS, any advice?

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@hollywood817

@dbamos1945 Thank you for the kind words. I was excited but had many questions when they initially reviewed the trial with me. The benefits and effects expected from the treatment were pretty astounding...how the alpha aminos do a better job then other treatments at "killing the house cancer lives in without damaging the rest of the neighborhood". They also explained how this treatment will kill the cancer such that it never returns. Dr Gregory Sibley, the head of VCS Fairfax, was as excited as a little kid at Christmas explaining this all to us. He walked us through a number of charts and slides and I was impressed with his approach. More scientific than anything I'd been presented with in the past. He said he expected me to jump at this opportunity (I did) and that it was the next phase in cancer treatment. I feel incredibly fortunate to be selected/allowed to participate in the trial and take my responsibility very seriously. I treat it like its a job and eat healthy, don't drink or smoke, etc. "Hope" is one component of our journey. Positivity, confidence, assisting others new on the trail and perseverance are other components (imo). I'll update here with my status after a review of next week's scans. Stay strong and thank you again for the kind words. - Tom

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@hollywood817: Just one more thing…if you are interested there is a great international organization called LACNETS. They offer videos/lectures/virtual meetings and everything regarding NET. There are many renowned specialists affiliated with this group. Lisa and Heather moderate. Best health for you.