Most docs don't see many AA patients. My experience, is that most are not that interested in learning about this disorder. I have downloaded Dr Tennant's material & offered to few docs. Most won't accept the handouts...say They know all about Arachnoiditis...I can usually tell which doctors are knowledgeable by what ensues. Not necessarily faulting doctors ,as i know they are extremely busy, over worked & so many changes in health care field that some drop out & find alternative careers. Around Phoenix area, too many patients as seems every one moving here & seems that they keep current on subjects they se frequently like heart, lung disease etc... Some times very difficult to get knowledgeable physician when it comes to Arachnoiditis. Not very many neurologists seem to deal with Arachnoiditis. They all seem to deal with diagnoses , sub specialties like MS, or brain tumors, types of dementia etc. I am now going to try The Barrow's Neurological institute & see if any one deals with this condition. Being a former RN, helps a little...but i didn't know anything about Arachnoiditis before developing it. Supposedly not as rare as it used to be. Ask around & if u are lucky to find a doctor who has treated or shown an interest in subject, see if u can get referral. It can be a lot of work! My current Neuro saw me for about 3 minutes, gave me several Medrol dose Pacs & some Diazepam ( didn't ask for this) He just said there is no treatment except steroids & that was that. Now i am developing bowel incontinence & some other choice signs of progression so trying the Barrows. If u are near a university hospital, or major medical center, try calling different neurology offices & ask if they even deal with Arachnoiditis. Seems it's trial & error & much work for the patient Good luck I am too old for hormones