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Exocrine Pancreatic Insufficientcy

Pancreatic Disorders | Last Active: 4 days ago | Replies (54)

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Docs are not much help at all. I found a website on Facebook that is really awesome. It may not always be a good read because I see so many people in worse shape then myself. But this disease is all trial and error and (the web site) its like having your own drug trial "so to speak". Unfortunately everybody out there is different and no one is a doctor but if it was not for that facebook sight I would be lost because the gastro I have just prescribes. We all need support with this disease, it is a life changer.. Also the fat thing is tough I have a hard time with the good fats they tell us to try because your always messin around with trying to dose it. Were all test tubes. the facebook website is :
Living With Exocrine Pancreatic Insufficiency (EPI) Support Group

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Replies to "Docs are not much help at all. I found a website on Facebook that is really..."

@jaded77zz

I have the same problem trying to know the amount of good fats to eat. I been given Creon, but I got a horrible reaction. I don't live in the US so ZenPep is impossible to get. I found some good OTC pancreatic enzimes and that is what I'm using.