@videvale Hello Vincenzo and welcome to Mayo Connect. As you have mentioned @ksnozal and @mijomi in your post, they will get notifications that you are interested in connecting with them about your wife's GNET.

How long ago was your wife diagnosed? Has a treatment plan been developed yet?

Hello Vincenzo,

This is Kris N. I’m so sorry to hear about your wife. I’d be happy to connect with you. As you know we have a very rare disease. How long has you wife been diagnosed? I just passed my 7 year anniversary. But I’ve been through A LOT of treatment and have many complications. Can I assume she is being treated at Mayo? Where are you from? I’m from the twin cities so luckily my drive is about 2 hours. I look forward to hearing back from you. God Bless, Kris

Hello Vincenzo,
I'd love to chat with you about our experience. I copy and pasted the directions below on how to send a private message to a user. I will send you one and hopefully you will receive it.
I know a few sentences cannot encapsulate all anyone endures whether it's the patient, family member or significant other. Please feel free to reach out anytime.
Love and light to you and yours,
Josey

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