Clay colored bowels & diarrhea side effects with Octreotide

Posted by splendrous @splendrous, 1 day ago

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in liver. Considered coming from GI Track. Had my first Octreotide shot 12/18. Three weeks later I have the above side effects. Wonder if the second shot will make it worst. I have a call into my doctor but wanted to know if others have had similar experience.

SEE YOUR DOCTOR AS SOON AS POSSIBLE (DURING OFFICE HOURS) IF YOU
HAVE:

• Signs of liver problems such as yellow eyes or skin, white or clay-colored stools.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

I’ve been on Ocreotide for18 months now and have not had that experience with the injections..

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I have been taking octreotide injections for 4 years for lung NETs and have not had those issues.

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Yes. I experience the same thing. I have been on the injections for 2 years.

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This is an interesting question, @splendrous. When you hear back from your doctor, I'd appreciate you letting us know about the doctor's response.

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Yes, I have had 25 Lanreotide injections (24 months) and have similar experience that you cite above. Diet matters.🙏

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@gesmone1

Yes. I experience the same thing. I have been on the injections for 2 years.

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Thanks for your reply. Have your doctors ever run any tests to determine if pancreas or liver function is good? Do they think it is not a symptom to be concerned about?

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@stevestenberg31

Yes, I have had 25 Lanreotide injections (24 months) and have similar experience that you cite above. Diet matters.🙏

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Thanks for your reply. So it has not gotten any better for you over the years. No damage noted to the pancreas or liver from the drug? That is what is my concern besides it seems that digestion is not working as it should to absorb nutrients. Best to you as you continue your treatment.

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