I have 3 doctors trying to figure out the correct treatment. Everyone has tried to explain and many more test are being ran. I live in a small village and all my doctors agree there is no one in this state that fully understands this illness. Everyone agrees I'm sick. It started with a clot in abdominal aorta then my right jugular. Started with xarelto then warfarin and lovanox injection. Even on several blood thinners now both jugulars, left corodid, right arm and leg have clots. I'm soon to start chemo to stop my body from seeing my red blood cells as the enemy. My doctors are trying to get mayo to accept me as a patient.