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Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Autoimmune Diseases | Last Active: Oct 3, 2024 | Replies (44)
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@penn

It's Hereditary but in my case it must be going back Generation's!! No one going back to Great Grandparents had it!! I guess I'm the lucky one! My brother and sister no.
I have no real relief. I use Trazadone for nerve pain and Aspercream spray, it helps the burning legs and Dr. Joel"s Max. Strength Neuropothy Hemp Cream, helps a little so I use it. Nortriptyline HCL 10 MG does anyone take it? Does it help? As of now I can't leave my home, sitting is so painful!!!! Thank You for reading this.

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Replies to "It's Hereditary but in my case it must be going back Generation's!! No one going back..."
John, Volunteer Mentor | @johnbishop | Jan 8 4:16pm

Hi @penn, I did a quick search of Connect and only saw one post by @tessie63 that mentioned using Nortriptyline HCL 10 MG. It's not much fun being the lucky one with hereditary neuropathy. Mine is idiopathic but the neurologist thought it might be hereditary as I mentioned to him that I have a few cousins with it. Have you seen the list of complementary and alternative treatments on the Foundation for Peripheral Neuropathy? - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

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dlydailyhope | @dlydailyhope | Jan 9 7:52am

@penn
My tips for SFN are compression socks, neuropathy and lidocaine creams/patches, voltaren gel for inflammation, magnesium and alpha Lipoic acid/acetyl l carnitine supplements, duloxetine Rx, increase circulation as much as possible to encourage oxygenated blood flow, check vitamin deficiencies and toxicities via bloodwork and supplement as needed, reduce and eliminate toxins/caffeine/smoking and alcohol.

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