Hi Bonnie. I’m so sorry to read about the loss of your husband. You’ve certainly had some major changes in your life over the past year and a half. And now you have another impactful decision ahead of you.
You popped into the right conversation about having Car-T therapy for your Multiple Myeloma. Other members such as @kirkwilliams2049 @denisej4032 @burchfield have relayed their personal experiences of having this procedure or having been caregivers for family member having Car-T for MM or other illnesses where this therapy is proving to be helpful.
It will helpful to meet with your doctors to get all the particulars. It may be a good idea to have a list of questions for your meeting such as;
Will I need a full time caregiver?
How long will I be in the hospital?
What are the risks vs rewards?
Followup care schedule?

I found a video on the Mayo website that explains CAR-T which might be helpful to at least give you information on the ‘whats and hows’ of the procedure.
https://www.mayoclinic.org/departments-centers/car-t-cell-therapy-program/home/orc-20404317
I know you’ll have even more questions after your meeting. We’re here to help you over the hurdles…So please let me know what you find out, ok?

Dear Bonnie,

My husband was in a clinical trial for Car T for multiple myeloma and CLL patients on November 5. This trial took place at Princess Margaret Hospital in Toronto Canada. The first thing I’d say, is that clinical trials are awesome. You get care over and above any standard care that I have ever seen. The second thing I’d say is that this therapy has been a miracle for my husband. He had come to the end of the line for any traditional treatments, and this trial was the only thing on the horizon, given the fact that he was getting sicker every day with a relapse. While we do not know how long it will last, right now there’s no residual disease to be found and this is in less than two months. He had his Car T therapy on November 5 with no side effects in the hospital or out of the hospital. None of the side effects that we were worried about, like CRS. The only thing that he experienced was fatigue for the first month. And after that, he started feeling stronger and stronger every day. We are two months post CAR T and my husband is out on the tennis court again.

Hi @4health4bonnie, how did your appointment go? Will you have CAR-T therapy? How are you doing?