I’m dealing exactly with what you are and it started 12 yrs ago in my toes and in my lips which have been numb since then.
Makes it difficult to eat because I can’t feel food that’s on my mouth.
Some of my face was also numb at that time
No one figured out what caused it, but over the years it’s traveled from my feet,to my legs and up my body
Have no feeling in my rectum or woman parts, can’t feel sometimes when I have a bowel movement.
Broke my ankle where the bone came thru my skin, and I felt nothing, totally numb.
Hard to walk, balance is horrible because both feet totally numb.
I’m like a weeble!
Right now my right hand is totally numb and my fingers are bent like a claw
Recently my primary sent me to an ortho doc and I had an EMG done
Awaiting results any day now.
Needless to say my quality of life stinks,can’t do much daily, can’t walk long distances,can’t find comfy shoes, my feet are in constant pain everyday.
So afraid to lose full function of my right hand because I’m a righty.
Trying to use my left hand more but it’s hard to
Can’t write or sign things now because I can’t hold a pen.

I have PN and it started the way you express. It has gotten worse over the 12 years. Went to doctor at spine institute told me they would not do surgery and if they did procedure would be 15 hours and no promises. Not even promises LOL! I have not had any surgeries over the years since I see poor results. Doctors love surgery when they have no clue $$. Seems nursing homes have lots with mal practice back surgery. After having every test and doctor I am 70 and there is no cure for this condition. Drugs............I can't get to physical therapy and realize this is the hand God gave me and I will do it until pain is just pain. Not the way golden years should begin. The realization is the hard part to know it will not get better just worse. Happy New Years!x

Mine started in my hands and feet in 2011. I am still fighting for an official diagnosis and cause. All symptoms point to small fiber neuropathy, autonomic neuropathy, and peripheral neuropathy because my sensory, autonomic, and large fiber nerves are all affected. I also have degenerative disc disease and spinal stenosis unrelated to the neuropathy and have had two cervical spine surgeries. I believe an immune deficiency and a virus caused mine. There are MANY causes of neuropathy, including but not limited to autoimmune issues, metabolic disorders, viruses, vaccinations, surgeries, and nutritional deficiencies. If your neurologist is not seeking a diagnosis with testing or seeking a cause, I highly recommend finding a new neurologist. I am seeing a new neuro next week because my current neuro only wants to focus on my chronic migraine. Everything I have learned about what is happening to me is from support groups and medical journals, not my doctors. Check out the Facebook group called Small Nerve Fiber Neuropathy. It is a good place to start since symptoms have spread to your face. Many people in the group, like me, have body-wide symptoms. The people are really helpful, and many are well-informed. Also, check out a video on YouTube, Small Fibers, Big Pain, and Radcliffe Institute, with Dr. Anne Louise Oaklander. I wish you the best.

It's not fun. Good luck!

I wonder if it’s possible the femur replacement pinched or damaged a nerve? Might be worth get an mri if possible.