I am so sorry to hear you are dealing with this! Even though I am new to Mayo and my daughter's condition is confounding to me, I had a foster baby who was born having seizures and went through a lot with him. That actually was why I was so shocked that Mayo only did the EEG for an hour-the shortest one done on that baby was four hours. Anyhow, he grew out of it and to make sure he wasn't having seizures, he was given an ambulatory EEG that allowed him to move around. He has had them in the hospital and at home but a video camera is set up and he just had to stay in view of the camera. I guess if they remove your medicine, it is a risk to get out of bed due to falling though. Maybe you could sit in a wheel chair instead of a bed?