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@tonyde

My understanding is an EEG will not show a seizure disorder unless there is seizure activity at the time of the test, similar to an EKG only working when there is a heart issue happening at the time of the test.

There is a long term test, lasting 3 to 5 days in a hospital setting. The patient is "wired" with the possibility a seizure occurring allowing the neurologist to determine the part of the brain causing seizures.

I had a bad seizure recently that required an ambuance ride to the ER, I was out for several hours, extensive tests were done and I have no memory of any of it, only that I woke up the next day in a hospital bed. The hospital neurologist recommended I be put in the hospital for 3 to 5 days with no medicine to trigger a seizure in a hospital situation.

I'm afraid it will be dangerous plus I won't be able to leave the bed without a nurse present. Waiting for a nurse is difficult for someone 70 with a got-to-go-now bladder. Some people on the Mayo Clinic stated that they had no or little seizure activity.

It's more complicated for you because the seizures are medication resistant. She needs and deserves some form of long-term test.

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Replies to "My understanding is an EEG will not show a seizure disorder unless there is seizure activity..."

I am so sorry to hear you are dealing with this! Even though I am new to Mayo and my daughter's condition is confounding to me, I had a foster baby who was born having seizures and went through a lot with him. That actually was why I was so shocked that Mayo only did the EEG for an hour-the shortest one done on that baby was four hours. Anyhow, he grew out of it and to make sure he wasn't having seizures, he was given an ambulatory EEG that allowed him to move around. He has had them in the hospital and at home but a video camera is set up and he just had to stay in view of the camera. I guess if they remove your medicine, it is a risk to get out of bed due to falling though. Maybe you could sit in a wheel chair instead of a bed?