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Titration down in steroids

Polymyalgia Rheumatica (PMR) | Last Active: 3 hours ago | Replies (13)

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@dadcue

"It raises some questions though if you start taking prednisone again once you've stopped, or even if you haven't stopped but you're having symptoms of adrenal insufficiency...."
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I found out that I could live with adrenal insufficiency symptoms although I didn't feel very peppy. I also had some pain that I could tolerate. It was an adrenal crisis that was concerning but that likely wouldn't have happened unless something catastrophic occurred.

It does raise more questions than answers. There is no best way to taper off prednisone. There isn't any proven way that will work for everyone. It was a miracle I got off Prednisone after so many years. My endocrinologist wasn't overly optimistic that I could.

Taking Prednisone was an easy thing to do. I didn't need any encouragement to do that. I needed tons of encouragement to taper off Prednisone. Fortunately, my doctors were a big help to me in that regard. The hard part was finding an alternative to Prednisone.

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Replies to ""It raises some questions though if you start taking prednisone again once you've stopped, or even..."

I couldn't get below .5 mg with out suffering PRM systems; that's when my rheumatologist suggested Kevzara. I'm totally off Prednisone and pain free for a year and half. Has anyone experienced Kevzara titration?

Im new to PMR and all this is very eye opening. I’m beginning tapering and am at 25mg now. I’m curious what the alternative to prednisone is that you found?