← Return to Evenity worked for me: Why I chose medication for osteoporosis

Discussion
Comment receiving replies
@monkhhi

She recommended Prolia as f/u to Evenity. She follows a large caseload of patients and the vast majority do well. Reclast was another option but I wasn’t crazy about getting an infusion. I asked about “all of the terrible side effects” with Prolia and she was honestly surprised. She said that she has only had to take less than a handful of patients off of it due to side effect and yes, if I have to stop, I will need to immediately get on another treatment (probably Reclast), because I will very quickly lose my gains. I will need to be on something for the rest of my life. I was under the impression that I could just improve my score, stop medication, and maintain with my exercise, diet, supplements, and hormones. I didn’t want to hear that I had to continue medication but honestly, after I thought about it, I was already doing all of those things and I had lost so much bone strength. I also met other women at the infusion center who were on Prolia and doing great. I asked the NPs if they see a lot of patients on Prolia (answer-yes) and do they see a lot of problems (answer-no, but if I notice any issues, let the dr know right away). I don’t have any pre existing conditions, haven’t had chemo, radiation, steroid use, or kidney disease. So we’ll see how it goes. Talk to your provider about questions/concerns and good luck with whatever you decide!

Jump to this post


Replies to "She recommended Prolia as f/u to Evenity. She follows a large caseload of patients and the..."

Thank you for this information!!

My first dose of Prolia had me feeling a little unwell, for about a week, but that passed.
Six months later my second dose left me feeling worse, plus, 13 days after that second dose I came down with shingles despite the 2 recent vaccines. The case was mild and my primary gave me Valtrex. Over the year I developed a painful itchy lesion on my calf. its lasting for weeks. I showed it to my dermatologist and he was stumped and suggested a steroid shot. I opted for steroid ointment as I am tapering off prednisone. No more prolia for me.

Until atrial fibrillation last year I was taking strontium citrate; it was recommended a long time ago by my former gyn. I had found 2 studies using strontium citrate, one from Canada and from Duquesne U. I followed their protocol which involved dietary calcium, 400mg(?) strontium citrate, and a couple of other micronutrients. my osteoporosis was reversed to osteopenia . I'm still osteopenia but I was on long term steroids for polymyalgia rheumatica. i stopped the strontium when I developed atrial fibrillation as I was on heart meds. I had a successful ablation and want to go back to strontium citrate.