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@katgob

jeffhampton- OMG. With that caregiving team you will have one or more who may just be the extra help that makes it work. We found not all helpers are the same, but each helps. Each has a specialty like our doctor and medicals teams.
I am day 272 past transplant. Crazy. Things i did from the time i was released from the hospital at day 25. NO GVKD, you get released earlier at COH in Duarte, CA. At home guided by my DR's orders and Lori here on Mayo, I drank half my body weight of water daily, took every single pill at the time directed. Ate healthy and rested. This startedday27 till Day100 after transplant. Walking was essential. I started small, but every day, by the time i left my caregivers house i did 5000 steps a day. Now i walk about 6 miles a day more or less.
Being healthy at the start is essential. You said you were and the tests they have you complete before you can have a transplant must be passed to move forward.
It is hard for me to believe today i even had a transplant. But my hair is only 1 inch all over or a bit more. That is my reminder that i am 3 months from 1 year. Once a Bone marrow transplant patient, always one. Let me be a great patient!

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Replies to "jeffhampton- OMG. With that caregiving team you will have one or more who may just be..."

Good morning, @katgob and @mary612 It’s so rewarding seeing the messages both of you are sharing with the new members in this conversation about their upcoming SCT adventures as either patient or caregiver. It feels like only months ago when I was having the same conversations with you! And here you are, coming full circle and now using your experiences to serve as someone else’s survival guides. ☺️

Cheers and Happy New Year to you and the new immune systems that are making life possible!

@katgob, are you any where near those horrible fires in LA? Please stay safe!