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Looking for help with radiation fibrosis; Tips?

Head & Neck Cancer | Last Active: Jan 9 9:10am | Replies (15)
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@sandy8043

My Radiation following tongue cancer surgery ended Jan 2024. Since then I've managed my lymphedema to a certain extent and kept up with my stretches, etc. But fibrosis is becoming an issue.
My surgeon in Rochester suggested seeing an OT for massage. I've had two appts so far. She is skilled in Myofacial Release Massage. I am seeing very encouraging results. I have better flexibility and range of motion. Its pretty amazing. My OT said once the my Myofacial tissue has been released it should stay that way for the most part. Meaning the results should be long-lasting. I would recommend this treatment to anyone experiencing radiation fibrosis following head and neck cancer. She thinks I will need 5 or 6 visits total.

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Replies to "My Radiation following tongue cancer surgery ended Jan 2024. Since then I've managed my lymphedema to..."
josk | @josk | Jan 9 9:10am

Hi Sandy
Since my onset and diagnosed in mid 2020 of dysphagia, dysarthria and severe neck fibrosis, I have been trying out various health therapies (including acupuncture), and now have resigned myself to a physio therapy session bi-weekly. Am also doing jaw, mouth, neck exercises daily - in the hope that it would help and delay my 'invisible' disabilities from deteriorating.
Good for you that you start your myofacial release massage early - believe it does help in preventing and/delaying the onset of late effects of radiation.
I have never looked into myofacial release massage - but will definitely look into this - helpful info.

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