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Hello. I am new here. My husband was recently diagnosed with nets.
Neuroendocrine Tumors (NETs) | Last Active: 2 hours ago | Replies (13)Comment receiving replies
I’m sorry you’re going through this. We also lived in California when my husband was first diagnosed with pnet in 2008. You’re fortunate in that there are many net specialists in California and it is crucial that he seek care from a net specialist. General oncologists usually don’t have the required knowledge and experience to properly treat this still rare form of cancer. Lacnets is an excellent resource. You can also find a list of specialists in California at
https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/?doctor=doctor&patient-group=patient-group&multidisciplinary-net-team-sites=multidisciplinary-net-team-sites&specialty=all&clin_state=California&radius=5&zip=&practice_type=all#sortables
Best of luck to your husband!
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Thank you Lindabees! Our emotions are all over the place right now. I hope there is hope for this diagnosis. It is pnet from the pancreas to the liver, stage 3 it sounds like. We will be having our appt soon.