← Return to Evenity worked for me: Why I chose medication for osteoporosis

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@sebutler

@monkhhi -- I see your doc, who seems very well informed, is recommending Prolia now, after Evenity course. I understand that one has to be on Prolia for life because of rebound if you stop taking it. So your doc is not recommending a bisphosphonates? Is that because she/he realizes you will have to be on meds for life because of the genetic component to your disease?? Thanks for any info you can share. I'm sort of in the same boat.

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Replies to "@monkhhi -- I see your doc, who seems very well informed, is recommending Prolia now, after..."

After my Evenity course I am on Prolia for 2 injections to increase my bone density further and then will go onto reclast so no Prolia is not for life.

She recommended Prolia as f/u to Evenity. She follows a large caseload of patients and the vast majority do well. Reclast was another option but I wasn’t crazy about getting an infusion. I asked about “all of the terrible side effects” with Prolia and she was honestly surprised. She said that she has only had to take less than a handful of patients off of it due to side effect and yes, if I have to stop, I will need to immediately get on another treatment (probably Reclast), because I will very quickly lose my gains. I will need to be on something for the rest of my life. I was under the impression that I could just improve my score, stop medication, and maintain with my exercise, diet, supplements, and hormones. I didn’t want to hear that I had to continue medication but honestly, after I thought about it, I was already doing all of those things and I had lost so much bone strength. I also met other women at the infusion center who were on Prolia and doing great. I asked the NPs if they see a lot of patients on Prolia (answer-yes) and do they see a lot of problems (answer-no, but if I notice any issues, let the dr know right away). I don’t have any pre existing conditions, haven’t had chemo, radiation, steroid use, or kidney disease. So we’ll see how it goes. Talk to your provider about questions/concerns and good luck with whatever you decide!