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Prostate Cancer | Last Active: 18 hours ago | Replies (24)
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I can certainly vouch for what you are saying: you only post what is pertinent to your own experience and that is what the forum should be all about.
I am not aware of any private discussions you may have had (ergo, the private part) between you and whomever, but I am glad you made your feelings known.
Keep up with all the great posts - especially if you are part of a study! THIS is the knowledge we all need. Best
Phil
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@heavyphil
Thank you Phil for you kind comments!.
When I decided to go to UFHPTI for proton radiation treatment versus Mayo Jacksonville (which only could offer photon) I did so after three (3) different consultations.
My last one was with my Mayo PCP who requested I meet to go over all we had learned. He had been doing extensive research on prostate cancer saying he wanted to be able to recommend the best tests and treatments for his patients. One of the medical facilities he did medical research at was UFHPTI and was thoroughly familiar with them and proton radiation.
When I went in for my treatment plan at UFHPTI. UFHPTI stated they had received a 25 million dollar grant to do reserach on prostate cancer, diagnosis, treatments with proton and photon radiation. They asked me if I wanted to be part of that research and I said yes. It required a lot more consent forms,, questionares, really detailed follow ups, and consultations.
But if could help in anyway being part of the research study I wanted to be able to help with a disease that I and many other men have and will have. Man the questionares are like 20 pages long with every personal, medical, and mental health question you could think off. And then when I go in for consultations they go over every single question with more questions and wanting more explanation of my responses. Then a very detailed medical exam.
I hope the future hold great promise for diseases like prostate cancer and we can do more to prevent it not just treat it.