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Replies to "This doesn’t sound like Dysautonomia. My husband had it last year and was hospitalized, then in..."
Autoimmune Diseases | Last Active: 3 days ago | Replies (8)
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This doesn’t sound like Dysautonomia. My husband had it last year and was hospitalized, then in rehab for three weeks. It was uncontrolled blood pressure, extremely high, then extremely low (fainting spells, etc). It took a long time to correct, and many different medications, but it’s under control now. His cardiologist recommended that he only take his blood pressure standing up, and that’s the number they use to medicate him. It seems to work.
Replies to "This doesn’t sound like Dysautonomia. My husband had it last year and was hospitalized, then in..."
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Hi,
Dysautonomia is incurable and untreatable, all one can expect is to have some of the symptoms treated, not the cause. I have been through over 30 different medications unsuccessfully and countless tests and investigations and been diagnosed as Dysauntonomia, in particular Autonomic polyneuropathy. Which means both main nervous systems are corrupted. Thankfully it doesn't affect the heart too much but has made my BP untreatable for fear it could make the drops far too low without warning, requiring emergency intervention. While I can sustain BP 240/145 it is deemed that not running the risk of BP drop is the best option. I am currently medicated and not very successfully for bowel and bladder issues directly related to Dysautonomia.
Dysautonomia is the collective title for many conditions which even the so called experts stuggle to recognise. It takes a specialist in this field to recognise and diagnose, which there are few.
Cheers