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@laree

Thank you! I am glad there seems to be alot of resources out there. (Also trying not to go down tbe rabbit hole if you know what I mean?) Try to find ways not to think about this 24/7.
Thanks so much for all the help.

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Replies to "Thank you! I am glad there seems to be alot of resources out there. (Also trying..."

I’m sorry you’re going through this. We also lived in California when my husband was first diagnosed with pnet in 2008. You’re fortunate in that there are many net specialists in California and it is crucial that he seek care from a net specialist. General oncologists usually don’t have the required knowledge and experience to properly treat this still rare form of cancer. Lacnets is an excellent resource. You can also find a list of specialists in California at
https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/?doctor=doctor&patient-group=patient-group&multidisciplinary-net-team-sites=multidisciplinary-net-team-sites&specialty=all&clin_state=California&radius=5&zip=&practice_type=all#sortables
Best of luck to your husband!