Chronic idiopathic constipation (CIC): Diagnostic Experiences

I am scheduled for another anorectal manometry along with additional nuclear transit testing. My initial anorectal motility testing was three years ago that led to a bowel evacuation therapy program. I have tried meds/supplements but not currently taking any, and I am not familiar with the other tests you mention. I did learn I struggled with coordination, so figuring out how to transfer what I was taught back to home in addition to fine tuning pretty strict lifestyle habits have been super helpful. I am including a link to the evacuation program. https://www.mayoclinic.org/departments-centers/bowel-evacuation-disorders-program/overview/ovc-20467190

Thank you. That sounds like a great program. The tests I mentioned are designed to diagnose pelvic floor dysfunction. I guess it might be a good idea to proceed with that. My two medications for CIC is covered by my insurance but I still pay $1000 out of pocket every three months. I also need to take a capful of miralax most days and a bidet is almost a necessity. How did you come to using that program if you don’t mind my asking?

Hello @bouli,

I'd like to invite @sallyw133, @oldjake, @triciapet and @faithful55 in addition to @jlharsh to this discussion as they have all mentioned undergoing one of the tests that you mentioned.

@bouli, does your provider think there is a possible link between pelvic floor dysfunction and the CIC?

Yes, that’s why she wants me to take the tests. If the tests indicate pelvic floor dysfunction then I would be sent to physical therapy or surgery if indicated.

I’m intrigued by those tests. The only tests I had was a colonoscopy and anoscopy. Plus, some blood tests. I’m scheduled for a breath test next month. I actually wish my GI team was more proactive, but I don’t think that is going to happen. Prescription meds didn’t work for me, though Miralax does. It’s not ideal, but keeps me from constipation, though not my normal.

Occasionally, I’m ok, so I know I am capable.

I wish you the best, Celia. It’s not easy to live with but it sounds like you’re optimistic. The meds I’m on are Motegrity and Trulance. Did you try those? The other ones that my insurance company okayed first didn’t work but these do. Good luck to you!

I tried Lubiprostone and Linzess.

I tried those too but they didn’t work for me. Luckily Trulance and Motegrity do but it’s not a perfect solution.

Good to know. I might check my new insurance and see if they cover those meds. If so, I might try them.

What’s so ironic is that I actually have had a few instances of diarrhea.

Apparently there is a form of IBS with diarrhea and constipation.