← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Discussion
Comment receiving replies
@reubenwithcidp

I have CIDP and have been on IVIG infusions every 3 weeks for about a year with minor gains. I was diagnosed when my neurologist did the EMG. He caught that there were very different responses in my legs and ordered a spinal tap to confirm the diagnosis. I think the spinal tap is the key to confirming if this is the issue. I watch the threads for other treatments, but nothing seems to work consistently and individual effects vary considerably. Good luck!

Jump to this post


Replies to "I have CIDP and have been on IVIG infusions every 3 weeks for about a year..."

I also have CIDP and went thru 8 mos of IVIG with no relief at all.
Also stopped Gabapentin 2400 mg for over a year, with no relief from that either.
Will be starting Rituxan infusions with a new neurologist shortly.
Hope that helps me