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Evenity New

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (16)

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@bevlevvancouverbc

@gently
Thanks for your input!
didn’t know that there could be a 3rd year on Forteo.
Forteo is now off patent, but the cost of generic Osnuvo
does not seem to be significantly lower in B.C. Canada.

@naturegirl15
Thanks for telling us how to follow a member’s
thread.
I wasn’t aware of how to do this.
I have read your bio and it’s been quite a journey!
Also, very happy to hear of your success with
Evenity, gains in hips and spine. And,
success with Reclast. Hurray!

@patwerthman
I’ve read your latest comments on " what to do".
It is exasperating. Don’t know if you’ve had fractures.
Don’t know what symptoms you have. Or
what you can or cannot do. Is there an urgency to
making a decision, today or tomorrow?
As a person facing similar delimma: I would say:
Can you get a second medical opinion?
If you're not happy with your Primary Doctor, is it difficult
to make a change. Have you been
referred to a specialist, rheumatologist or endocrinologist.
Make a list of questions, what is of concern to you
personally. Be proactive in getting the best
medical help you want and need.
Make no decision in a fog of fear and confusion.

@gravity3
I have not had Reclast. I have not had any
medications. This question was probably
intended for someone else.

@hip123
Sorry to hear about your rib fractures,
after Prolia and Reclast
----------
my new comments Jan 6th, 2024
Having hip123 tell about her rib fractures:

I am asking this question:
Dr Keith McCormick, in several interviews talks about
breaking his ribs, and the number of fractures within
a short space of time.
“I would barely do anything, and I would break a rib,”
I gather from some of his interviews, not sure which,
Irma Jennings, or others. There is also a podcast where
he mentions, that after treatment, he was at -3.3
dexa number. After treatment.
Many on our Support Group would find this
dexa number a Red Flag.
His treatment, I can be corrected, am
not sure, was Forteo followed by Reclast.
And he has not followed up with any other treatment,
or has he, if he has not why not. He is training, or actively
doing IronMan. Which is impressive.

If any of his present clients are reading this thread,
is it permissible to ask him that question.?
What is the reason he not followed up with
further medical osteoporosis treatment.
If he has, what is he doing. what medication is he taking.
And if he is not doing anymore meds, his goal
seems to be to keep himself in good shape, proper nutrition,
(he has a website and sells nutrients) and maintaining
dexa score.

He gives advice and has written
a book on this subject. And we greatly appreciate
his help.
I ask: are these questions too personal, crossing the
threshold of his privacy,
or are these valid questions, because he is
actively involved in discussions and interviews.

I would like to mention something about Balance.
There are several members on this Support
Group that have unfortunately fractured very easily
with day-to-day activities. The majority of fractures,
something like over 80% happen with fragility falls
(or trauma).

There are, as I mention, those who fracture without
falls.
I have a youngish dental hygienist who has broken her ankle
and areas of her ankles, twice, from playing soccer.
I also had a youngish (30-40) doctor who had stress
fractures in her foot.
I don’t know their medical history and if they have
very early onset osteopenia. Or something else.

to continue: Balance to prevent fractures.
I was interested in a recent video with Dr
Belinda Beck of LIFTMOR, who said standing on one
leg is not enough for balance. So, perhaps, once
we are able to have good balance standing with one leg,
and tandem? we should be
thinking of Dynamic Balance exercizes. Look on
web to see if that is something you wish to include
in your exercize program, when you see fit to do so.

I have found a physiotherapist who is competent
and knowledgeable. He says that PT sometimes
underprescribe with osteoporosis patients because
of focus on Safety First. So I am prescribed beginners
program. Not hard to do. What I really want to do
eventually is LIFTMOR type of exercizes to improve
density in hips and spine.
Slowly, progressively with a spotter.
With or without meds.
(Dr Belinda Beck mentioned in one of her presentations,
that some participants at her clinic started the
program along with their meds, and eventually
discontinued the meds.)

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Replies to "@gently Thanks for your input! didn’t know that there could be a 3rd year on Forteo...."

"He has not followed up with any other treatment."
Women lose estrogen suddenly at menopause. Men only lose testosterone comparatively with specific treatment for cancer.

Women's vulnerability is why it is so typically a woman's disease.
I only know of Dr. McCormick through posters on this site. No one ever says anything negative about him. Without reference to him, you might cautiously remember that osteoporosis is a different disease for women.

In response to my comments-
I am seeking new input from Cleveland clinic and one other in addition to researching more intensively. I expected an improvement after my 3rd year dexa scan in 3 years on alendronate, but nothing This is not a specialty dr and there aren’t many specialists in the area. Saw an endricronologist still in Physical therapy No breaks or fractures yet. Healthy overall