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First trip + Seeking others with similar experiences + Helpful tips

Brain & Nervous System | Last Active: 1 day ago | Replies (5)
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@mocsmith

Thank you! EDS is definitely on my radar! Or other connective tissue diseases...I seem to fit in that category quite well. I'm suspicious of a mitochondrial disease as well. My local doctors I have now are super supportive but they just don't know much on those topics and are struggling to treat my wide range of symptoms. I'm really hoping that Mayo can be the glue I need! 🤞🏼

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Replies to "Thank you! EDS is definitely on my radar! Or other connective tissue diseases...I seem to fit..."
keithl56 | @keithl56 | 1 day ago

My neighbor's daughter (early 20's) has EDS. There are not many doctors or facilities that are well versed enough to properly diagnose or treat this. The girl next door had to travel from SC to Johns Hopkins in Baltimore to get a good specialist.

Good luck!

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