We noticed memory loss. We didnt know at the time these symptoms were LBD, but he had a continual drippy nose and no taste, before covid. His driving was not good and he would be lost at times. No one in family would ride with him. He eventually had to have a drivers exam at a professional school. He was advised no driving and that blew him up.
He would continually say I told you something when he never did.
He stopped showering. Now it is a struggle.
He is losing language skills. He reaches for words and sometimes just stops. The thought is gone.
We started with neurology at mayo in sept 1 1/2 yrs ago. He had 4 hour test, mris, pet scans and then had the lumbar puncture test. That is what led to his diagnosis of LBD with Parkinsonisms, testing positive for biomarkers in alzheimers.
He has declined considerably. He sleeps alot. He was continually crying and saying he wanted to go home. We were able to get meds to help quetiapine with the crying and his anger. Thank god. He is mad we took his credit cards away. His wallet has been lost twice.
I had to take text off his phone as texts sent to grandkids that made no sense. I monitor his phone with Facebook. He enjoys scrolling but have to delete his comments as inappropriate. I hate to take everything away.
We have hospice agency coming to see if we fit in there criteria this week. Not for end of life. But for help for us along the way.
It is up and down. You never know where you will be everyday.
I wish you peace also. It is a journey that is not for the feint of heart.