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@donnamac

A "Hopkins Trial" cardiologist sent me for many cardiac tests because of heart palpitations, a-fib, pvcs, pacs...24/7. He immediately said he is sure it is long covid before he even ordered these tests. And he is NOT my regular cardiologist. He is a brilliant Hopkins Cardiologist/Professor in charge of a medical trial I am in which is not COVID related. We had an appointment and he asked how I was doing. When I told him, I had Covid and pneumonia right after our last visit, and here it was 8 months later, he said "I'll run tests but I am pretty sure it is long Covid". So I had a monitor for 3 weeks, a CT scan, a arterial scan and also an Echo, he found I had developed a second murmur that I never had before. But, there was nothing really that would cause the issues other than what Covid left me with. He predicted the symptoms would be gone hopefully within a year's time. Exactly one year after Covid and the heart issues, this past November, all the issues were gone. POOF.
I took the test results to my regular cardiologist, and shared via online first and then brought in the written results. Well, he was "sick" for my appointment and I got a call that he could not see me but I could see the NP. So....in I went, and this NP came in the room with a scowl on her face and when I told her why I brought in results, and also why the circumstances led me to have the tests via Hopkins since I am in a gene trial and have been for several years she said "I'VE NEVER HEARD OF SUCH A THING AS LONG COVID". AND YOU ARE IN TRIALS? HOPKINS TRIALS?"
So, I have a doctor who believed me but he is not my regular cardiologist. He was thorough and gave me the results as they came in. He was honest and said, they can try and help with symptoms but there is nothing at this point anything else the medical field can do. It is too early to understand the damage COVID can cause.
My point is this: I have a doctor who was proactive in testing the symptoms, believing in Long Covid, and admitting there is no treatment. He also said if a doctor says he/she can cure it, or needles in the ears acupuncture, etc. etc. etc., can cure it........RUN. Treat the symptoms and hope it all goes away.
*side note---I will never go back to my local cardiologist whom I only saw a handful of times.

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Replies to "A "Hopkins Trial" cardiologist sent me for many cardiac tests because of heart palpitations, a-fib, pvcs,..."

My husband, who has a lung transplant had Covid a couple of years ago. He had several complications including pneumonia; however, after they discharged him from the Mayo Clinic he started having fevers, shakes and memory loss. To make the story short, he was admitted 8 times in 3 months and every time they sent him home, because they couldn’t find anything (although most of the test results were off the charts), he came home weaker. I had to convince the doctors that this could be a case of long Covid and found an expert in long Covid at Mayo Rochester who finally diagnosed him. The patient and the caregiver are the best advocates for the patient’s health. Good luck in your search for answers.