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Concerns after lobectomy for carcinoid tumor in lung
Lung Cancer | Last Active: Jan 11 9:13am | Replies (12)Comment receiving replies
I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I was told the tubes in my right lung is mildly bronchiectasis, in my middle lobe. The tube is full of mucous causing my wheezing, coughing. To control any further blockage or growth have been put on Octreotide injection once a week.
Also, strange finding my mammogram of my right breast has many speckles not seen last year. Need to go back for ultrasound. Along with a burning sensation.under my right shoulder blade. Any comments on breast cancer found with Lung Neuroendocrine?
Replies to "I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I..."
Back in 2020 I was being treated for ductal carcinoma in my right breast. After surgery(lumpectomy), radiation I was pretty stable. Post 9 months in 2021 I was diagnosed with a Neuroendocrine Tumor in my left Lung. No one at the Mayo Clinic in Rochester, MN told me I had any nodules. My doctor at my Veterans Clinic mentioned I needed another CT for follow-up because of these. Total surprise to me. I ended up having a "Wedge" procedure where they removed part of my left upper lobe. Neither of these cancers were related or caused from my smoking.
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I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated; however, there are others on Mayo Connect that have breast NETs.
I had bronchiestasis and every other issue with lung NETs and DIPNECH. Has the octreotide helped? It took a couple months for me to notice any difference and almost all respiratory symptoms were gone after a few months. Hope you have the same experience.