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MAC Big 3 treatment and negative sputum conversion

MAC & Bronchiectasis | Last Active: 3 days ago | Replies (15)
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@cwal

Lavage results per bronchoscopy are usually considered more accurate.
It is standard to give the Big 3 for 12 months after conversion to negative.
Are you seeing a Pulmonologist that specializes in the treatment of MAC and Bronchiectasis?
Also, are you doing airway clearance?

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Replies to "Lavage results per bronchoscopy are usually considered more accurate. It is standard to give the Big..."
desperate2 | @desperate2 | 4 days ago

I am seeing both, pulmonologist and infectious disease specialist. They haven’t treated anyone with MAC before though so they are not sure how to proceed at this point. If the lavage is more accurate, my treatment isn’t working. In that case, I need to decide whether to take big 3 daily or change/add medication. I am getting second opinion but my health insurance won’t pay for anyone outside my network and they don’t have a doctor for MAC. That’s why I am interested in hearing from others that went through this.

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