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Undifferentiated Pleomorphic Sarcoma
Sarcoma | Last Active: 1 day ago | Replies (90)Comment receiving replies
I was diagnosed with pleomorphic sarcoma in my right upper leg last May30,2024 and was operated on July 26. The oncologist surgeon thought the sarcoma was freestanding until he opened me up. The femoral nerve was also part of the mass and had to come out. I have had 30 days of radiation and get checked in Feb. 2025 to see if it has metastasized to my chest. Since the nerve was removed, I need to use a brace and walker. I also found out after surgery that I had this sarcoma for 3 years and I think it was Stage 2 (maybe 3). I never felt it or I’ll in any way; not even when ai was diagnosed.
Do you have pleomorphic sarcoma? Have you had surgery? It is so good for me to be able to communicate with others who may have this sarcoma. Please continue to share your story. It’s frustrating for me not to have anyone else to talk with about this.
Replies to "I was diagnosed with pleomorphic sarcoma in my right upper leg last May30,2024 and was operated..."
Hello Lydia. I have been exactly where you are. I had same sarcoma in same place. 25 radiation treatments in 02/2020, surgery 04/2020, 3 years of mri & chest ct's evrry 3 months, and 2 yrs of same tests every 6 months. In 05/2025 I start a once a year regimen for the rest of my life. The regimen is required to look for Mets. So far so good. At 76 years old, this is the 3rd bad cancer I've had, all totally different. I've learned that the best thing a patient can do is to maintain a great attitude and do the test regimen on time. Mayo's Orthopedic Oncology is the best. Trust what they do and say. You can get through this. Best wishes to you.
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I had a 1.9 cm ups removed in October and going thru 35 radiation treatments now. I think we caught mine early and I was told it was superficial. It was on my left shoulder and the 1st CT scan said no other problems. Mid March is my next check up and I am doing well. I have continued everything I was doing other than being able to head to a warmer climate. Seems no one knows much about ups. Good luck 🤞