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Anyone have flat back syndrome?

Osteoporosis & Bone Health | Last Active: Jan 9 8:46pm | Replies (5)

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@donnad1

YES
I had Harrington rod fusion surgery in 1981 at 14 for scoliosis.
Worse decision was to have corrective surgery because at 41, I lost my career due to the onset of severe Flatback syndrome .

I have suffered through innumerable injections, nerve ablations trigger points , saddle blocks to no avail to help with the severe pain
I have to sleep since 2009 in a v shaped position in a chair. I can't lay on my back or sides.
My SVA measurement is 22 . Which is basically almost unmeasurable at this point because it's greater than room to measure on xrys.
I didn't know I was getting a NEW deformity cause by the scoliosis surgery which flattened my lumbar curve.
I have all my original hardware in my spine and now I have osteoporosis!
I pray I don't get vertebrae fractures because the steel rods could shift and paralyze me .

Every one who had Harrington rod surgery for scoliosis will develop flatback if they were fused to L4.

MANY sued the manufacture of rods but I never knew that I could sue.
I was earning 6 figures when I could no logner stand erect at all and had to stop working in sales.

Searing pain is a daily thing.
Who is ready to retire at 41?! My best earning years were stolen!

I was never told to be on lookout for difficulty standing erect or I would have seen a osteo Dr ASAP.

I've had 5 surgical evaluations all say a pedicle subtraction osteotomy.
But I'm not a candidate for surgery because I have osteoporosis.!
So they said take prolia for 18 most then see.

Haha! Well medicare doesn't cover all of the cost and I would have to $968 a month per shot for 18 months.!
Considering I had to go on social security at 41 yrs old I barely get 2k a month on disability and I'm unmarried no kids and no ability to work since 2009.

So Where's the money for osteoporosis shots going to come from?!

I HATE MY LIFE, MY BODY, MY LOT ,THE SURGEON Who DID THIS.
They scared my Mom into the surgery saying I'd be hunchback by 25 and dead.

Well I'm developing KYPHOSIS ON TOP OF FLATBACK AND SCOLIOSIS. So I AM becoming HUNCHBACK AFTER all ANYWAYS!!!!
I'm homebound , can't walk any distance at all, don't have peers or friends any more and I would love to die and be done with this tortuous life.
As a Christian it's tested my faith. I know God's got me but still it's a living battle to just wake up and move each day.

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Replies to "YES I had Harrington rod fusion surgery in 1981 at 14 for scoliosis. Worse decision was..."

Dear Donnad1, I am so sorry to hear you are going through this and feeling so alone.
What springs to mind is it would be so good for you to connect with others, possibly a forum, perhaps your church or maybe there is a volunteer service where people will phone you. Do seek help, i hope you can find the strength to do so.
Best wishes, Sharon

As I'm reading your post I can identify with everything your saying and feeling. I have had scoliosis and then eventually got flat back. This all happened after I had surgery for Chiari malformation. It seemed one day I was straight as an arrow,next can barely walk,chronic pain 24 hours a day and I'm not a candidate for surgery either. So unless they come up with some magical cure? I guess we have to deal with it. I do wish I could help u in some way. If u ever want to text. Friend request me on Facebook,Helen Bissett goldstein. Just let me know do I can look for u! Take care XO