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Decipher Results and Outcomes

Prostate Cancer | Last Active: 18 hours ago | Replies (24)

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@jeffmarc

You replied with information directly related to an answer I gave somebody else that started this conversation. The way you responded made me think you were the person that originally asked for assistance.

Since I thought you were the person that started this conversation I used their information to reply to you.

Excuse me!

The information I provided was directly applicable to the person that started this conversation, If you had made it clear that the treatments you were provided, and your medical history related to PC, was different from the original poster, I wouldn’t have replied the same.

The information I provided was accurate. Castrate resistance can occur with any ADT drug. Doctors do go by the PSA doubling time to decide whether to move on from ADT.

Most of the things I post are based on my experience After 15 years with four reoccurrences. I also post based on experiences I have heard from other people After attending weekly advanced prostate cancer online meetings for at least four years. I have heard all different types of prostate cancer cases and treatments for it. I don’t guess, What I post is also based on many years of knowledge from attending dozens of online cancer seminars, hearing other people’s treatments, and what I have experienced. If I recommend a specific treatment I say to ask your doctor.

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Replies to "You replied with information directly related to an answer I gave somebody else that started this..."

@jeffmarc
If you put in at top of a post the specific I.D. of a poster you are talking to that poster specifically. If you meant to talk or refer to what another poster posted then put their I.D. in there not mine. If you want to speak generally then don't put in I.D.'s and be generic not saying you said this and you stated that.

I do not need to make clear my posts it is your post that was specifically directed to me and with incorrect information addressing what you said I posted which I did no. Each medical labs are different and what one has for guidelines might not be at another. That is why I only post what my medical doctors advise me of the specific lab they use. I have no idea of the details of what other labs have for guidlines and numbers nor would I infer I do.

When someone hasprostate removed and/or hormone treatment I respond to them I have not had hormone treatments and did not have prostate removed so can't comment as don't have direct experience. I will give feedback on direct experience I have had on diagnosis, tests, treatments, my specific side affects, medical institutions, doctors, only.

On another forum the Director on MCC and mentor stated the purpose of MCC is not to come for medical advice. It is for sharing experiences and provider inspirations to others. Recently the Director again posted the guidelines for MCC emphasizing MCC should not be used to replace your medical doctors and specialist advise, information and direction of what is best for you.

We have to be careful on MCC to not say do this, or don't do that, or say take this or that, or you need this or that. Or infer in anyway we are medical experts in a medical topic. We cannot diagnose a person from a post no should we try to. Nor should medical professional try to do diagnose and guide someone without a complete medical history and testing of that individual specific medical information including mental health.

Your personal expereince with prostate cancer in extensive. It is different to advise a poster to ask your medical providers about treatments, tests. what this means or does not mean for that specific person. I do not go to google to get my medical diagnosis or get a medical question answered. I will use professional medical doctors to do that. If I research something I will ask my medical providers about it. If I want more information and or clarification will seek second opinions.

Many on MCC have attended seminar, done research, gone through second and third opinions. I have learned a lot from others. However what I learn and questions that arise from discussions and research I asked my medical doctors how the apply to me specifically and what this or that tests means specifically to me. That is what Director of MCC meant that MCC is not there to replace the medical diagnosis, tests, treatments of medical professionals and what they mean specifically to you.

I wish you well in your continued journey with prostate cancer.

I have a question for this forum : " WHY IS A DECIPHER TEST IN THE USA CONSIDERED BY MOST AS - THE GOLD STANDARD " ? It is rarely used worldwide , almost never in Canada .
I have also read they tend to over analyize on the high side , BYA type of testing .
Constructive comments will be very much appreciated