← Return to Newly diagnosed and scared

Discussion

Newly diagnosed and scared

MAC & Bronchiectasis | Last Active: Jan 5 1:30pm | Replies (41)

Comment receiving replies
@suzek

I was like you and to some degree still am more concerned about the medications than the disease. I was on all three. I also had flu like symptoms, fatigue, hot flashes and chills on and off all day, and worsened depression and anxiety. I feel like the hot flashes were from the medication interfering with my hormone replacement. I finally went off of them for several weeks but started going to the clinic at UAB and am now on two. I was taken off Rifampin.
This time I’m not having flu symptoms, hot flashes or chills. The depression, anxiety, and fatigue are still pretty bad. When I saw my dental hygienist a few weeks ago she said there was a stain on my teeth but she was able to get it off.
The first ID Dr. told me to have my eyes checked monthly but did’t feel it was necessary to have my hearing checked. I was having ear problems not that long ago and finally went to my CRNP. I told her about the hearing test and she said she wanted one done so I’m set up with my ENT to have one in a few weeks.
This whole thing is difficult.

Jump to this post


Replies to "I was like you and to some degree still am more concerned about the medications than..."

Yes, the whole thing is difficult. More difficult than my pulmonologist has led me to believe, anyway. I had trouble with Rifampin early on. Chills and tremors. Doctor stopped it for two weeks and then reintroduced it slowly. I'm better except for the coughing (especially after I get out of bed) and the fatigue. That said, I've been feeling a little off lately. Never thought that it might be anxiety owing to the meds. I'll have to be more aware.