Incontinence Improvement with Pelvic PT?
Its only been since December 7 that I've been in PT and recently began tracking using the 24 hour pad test. Since February 11 the average is 444/24 hours. The 2 day moving average is 418/24 hours.
This looks like I'm far behind the curve of those who eventually made significant improvement.
I'm interested in other's comments about their rate of improvement over the initial months following RP.
I do my daily kegels, and other exercises from PT. No caffeine or alcohol. 73 years old. No problem prior to RP.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Great job Jerry and congratulations. I am very happy for you, your family and friends. Great progress.
With a one hour voiding schedule 24 hour grams is declining at 8g per day. One hour voiding is pretty much socially awkward. Two to three hour voiding seems far into the future.
I’m happy to read so many positive posts bringing great emotional support that my team does not address.
One element not discussed, unless I’ve forgotten, is climacturia. If you can get by incontinence, which I’m struggling with, and ED then climacturia is an issue that doesn’t get much discussion. In my case the care team position is “ it happens, too bad.”
I have found no solution and it’s relationship devastating.
Has any one tried Emsella Chair ?
(I had HoLEP prostate reduction and still have stress incontinence after 12 months inspite regular kegels with a PT
Esmella Chair apparently does 10,000 kegels every session of 30 mins. Mayo clinic was trialing this with patients who suffered from stress and urge incontinence
Any feed back will be appreciated as I want to enroll with Emsella Chair next Month I don’t know whether it will help or worsen my stress incontinence. Tks. Merry Christmas and happy new year to all participants.
Can anyone share the use of Emsella Chair , I read about it it says you sit on this Chsir for 30 mins and it does several thousand kegels in 1 session of 30 mins.
Mayo clinic was trialing this Chsir with patients who had stress and urge incontinence. Can someone From Mayo clinic comment on this trial.
@nickt6667, see this related discussion:
- BTL Emsella chair: Does it help for incontinence https://connect.mayoclinic.org/discussion/blt-emsella-chair/
My doctor scheduled me for 1 treatment with this chair before my surgery. Basically it triggers all of the muscles in your pelvic region over and over again I can see how it would help. There is a dial where you can adjust the level of the pulses. I had it all of the way up.
I am not sure I needed it since I never had any issues before and I could hold it for 14 hrs or so easily. And since my surgery I had very minor issues just for a day or two.
Mayo Clinic Connect (https://www.mayoclinic.org/zh-hans/tests-procedures/penis-pump/about/pac-20385225) published the "Penile Pump" and has been used clinically. One of its functions is to improve urinary incontinence after prostate cancer surgery. What I want to know is: What's the price? What is the postage from the United States to China?
Vacurect penis pumps are also produced in the United States, which work better, but are expensive.
I had RP surgery at age 65. Post-surgery, a PSMA PET scan showed cancer present in lymph nodes near the prostate fossa. They were removed 4 months after the RP, and a couple of months later I began 2 years of ADT and had 39 salvage radiation treatments. Kegels alone helped me get good (not perfect) control through the first year post-surgery. After that, urinary continence worsened. My urologist put me on low dose tadalafil and ordered pelvic floor PT. PT helped a good deal, but I still wore pads at night and shields often during the day. Since coming off ADT on schedule, my muscle tone has improved over all, and the incontinence was virtually gone; however, when I went off tadalafil last week, incontinence returned. I'm about to go back on it and keep those muscles juiced up for a while longer. I continue to practice pelvic floor PT at home. Key takeaway: ADT reduces muscle tone; you may therefore experience reduced control; you may regain control after you complete your course of ADT and muscle tone returns.
Just joined this group. Robotic prostratectomy Jan16 catheter for two weeks and just 2 and 1/2weeks from catheter removal. I have read all the posts and really appreciate the information. I understand we are all different and that this is more of a marathon than sprint. However, i do not want to waste any time doing things incorrectly. I found a specialist PT that is helping me with Kegels. I am 71, the catheter was in a bit longer than many. I notice some improvement in the mornings like a few reported on this site. However, the nights seem to be the worse which seems at odds with others experience.
Any tips to get through the night better? I end up getting up every two hours to either change and/or urinate and dry up. I also end up getting about 4-5 hours sleep due to all of this.
suggestions (besides waiting this out)??
thanks
My pelvic floor PT specialist said that nighttime incontinence is the most difficult to deal with. Things that helped me were limiting liquid intake after 8 p.m. and getting up to urinate one last time before turning out the light before sleep. You might also try setting an alarm for 1.5 hours after you go to sleep. Your sleep would be disrupted, but at least you wouldn’t be dealing with the mess, and maybe you could fall back asleep faster. Be patient. It took me about 3 months after catheter removal before I felt comfortable not wearing protective underwear to bed, and I would still wear it if I was very tired and felt I might sleep through the urge to urinate. Good luck!
Thanks so much
I appreciate the comments. I had hoped for rapid improvement but I guess I cannot make my muscles learn a new function or relearn a function that has been severely interrupted. If someone told me to do 5,000 keels a day and that would speed things up, I would do it. However, I understand and accept that that is counterproductive.
I hate that it is hard to get to sleep and I get short little rest periods.
Any tips about having the urge to urinate even when the bladder is empty??
Thanks again