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Decipher Results and Outcomes

Prostate Cancer | Last Active: 13 hours ago | Replies (24)

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@jc76

@jeffmarc
We on MCC are not professional medical experts, specialist or doctors. I post that all the time I am not and thus just my personal expereinces and direct knowledge of my diagnoses and treatment. I would not tell others what to do or not to do, diagnos antother's medical condition or what specific treatment they should get for them.

Even getting diagnoses or recommending specific medical treatments from medical professionals, medical expert, doctor, or specialist that are not your personal doctors and/or do not have the patients complete medical history, all medical tests, procedures, medical and mental issues, and information needed to do so should be cautiuos if applicable to them personally.

I recently was on MCC in a different forum about heart rythm. A poster posted what medication should I take and listed the medical issue. The mentor answered that MCC is not a forum to optain medical advise. It is a forum for others to share their expereinces with the medical issue, their specific personal journey and provide inspirations to others.

You posted: "You also said your surgeons equipment didn’t go below .2, after getting exactly that 1 month earlier."
Where is that on my post? My surgeon who did my biopsies never mentioned to me anything about .2 levels on Mayo equipment nor anyone else.

I posted a reply to another poster what my Mayo PCP in our last consultation after my PSA test came back at .22. My PCP advised Mayo Jacksonville Lab does not give number below .1 as below .1 would be considered undetectable per Mayo Jacksonville lab. He did not advise what other labs do or give numbers just my specific test and what Mayo Jacksonville lab does on PSA testing.

You also posted: "You are on Orgovyx , if your PSA has a significant doubling time you would be considered castration resistant, and get one of those two drug types I mentioned."
I am NOT on Orgovyx, never posted I was. And if I was I would be relying on what of the most prestigous medical facilities and specialist to guide me on what my treatment options were.

When I posts I make sure I inform posters I did not have hormone treatments, the reasons why my R.Os (two separate consultations) did not put me on is specifically to my prostate cancer, diagnosis and risk level. Thus I cannot comment on hormone treatments from my personal expereince. I also say this about prostate removal as I don't have any personal expereince with it either.

What I do is mentioned what I did and had done and why I personally made the decisions. I always mentioned talk to your medical professionals about this or that and see if applicable to them. If you don't like what they say or are recommending I personally would get second opinion. I posted that the reasons I personally got a second opinions was to have the added diagnosis and treatment options coming from different medical professionals not because I did not respect the information given to me by either consultations experts.

I post what my personal expereinces with something. I would not post something I read on goggle. I learned about Decipher tests, PSMA tests, bone scans, MRI with contrast, transpernial biopsies with MRI Fusion, and phtoton and proton radiation I learned from my expert medical professionals and personal experience. I only post my own personal expereinces with prostate markers, Space-Oar and getting 30 rounds of proton radiation. I also post my personal side affects, and my consultations and follow ups emphazising this is me personally and not what you should expect, do. or is best for you.

Everyone has different levels of qaulity of life expectations, pain tolerance, mental outlooks, stress and axniety, and what is best for them is what is best for them and their personal journey with prostate cancer. We are all different with each cancer diagnosis, specific expereiences, tests, side affects, outcomes a specific and personal expereinces.

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Replies to "@jeffmarc We on MCC are not professional medical experts, specialist or doctors. I post that all..."

You replied with information directly related to an answer I gave somebody else that started this conversation. The way you responded made me think you were the person that originally asked for assistance.

Since I thought you were the person that started this conversation I used their information to reply to you.

Excuse me!

The information I provided was directly applicable to the person that started this conversation, If you had made it clear that the treatments you were provided, and your medical history related to PC, was different from the original poster, I wouldn’t have replied the same.

The information I provided was accurate. Castrate resistance can occur with any ADT drug. Doctors do go by the PSA doubling time to decide whether to move on from ADT.

Most of the things I post are based on my experience After 15 years with four reoccurrences. I also post based on experiences I have heard from other people After attending weekly advanced prostate cancer online meetings for at least four years. I have heard all different types of prostate cancer cases and treatments for it. I don’t guess, What I post is also based on many years of knowledge from attending dozens of online cancer seminars, hearing other people’s treatments, and what I have experienced. If I recommend a specific treatment I say to ask your doctor.