Have you had a PET scan? 60% of the time NETs have spread before they find one. And I think over 75% of patients ultimately have metasasis. You need a specialist ASAP. I was diagnosed with SI Net 1/4/23 after numerous trips to my GP for symptoms over 18+ months. It had spread to stomach and liver. I had emergency surgery 4/21/23 after the SINET caused a blockage. I've cut out red meat, alcohol, foods high in amines. I try to eat mostly whole foods and less processed foods. Is/are your NET(s) functioning or non-fuctioning. This will affect your diet and your oncologist recommends for care. My BM are not much different from before the SI resection and removal of my gallbladder. I do get diarrhea increase around the time of my monthly Lanreotide injection. Hang in there. I'm 56 now and work out every day and otherwise live a normal life. Best of luck to you.🙏

I also had small in intestine had surgery soon after finding out they took about a foot of intestine out with attached fibroid that were positive. Positive in liver about 5 years later. I have several. Watching growth that has been slow. I have noticed and learned certain foods cause diarrhea. I am very Sugar sensitive. Good luck