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What do you all think of #Social Media Listening ?
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (18)Comment receiving replies
Hi DadCue, Is Mayo Connect considered to be "social media"? - I think so. Was one of the conversations about Kevzara on Mayo Connect analyzed as part of the study? - NO! That would be a violation of our guidelines and is not allowed. If you have questions like this feel free to use the Contact Mayo Clinic Connect form (link at the bottom left of every Connect page) to contact a moderator. Here's the link - https://connect.mayoclinic.org/contact-a-community-moderator/
Replies to "Hi DadCue, Is Mayo Connect considered to be "social media"? - I think so. Was one..."
The quickest response re: whether MAYO Connect 'social media' was analyzed might come from the study authors!
And re: "conversations about Kevzara on Mayo Connect" the specifics of this comment is being misconstrued : what I said was that "when I GOOGLED "Kevzara and PMR" the Connect conversation , which I linked , showed up in the Google search.
@johnbishop wrote: "Was one of the conversations about Kevzara on Mayo Connect analyzed as part of the study? - NO! That would be a violation of our guidelines and is not allowed. " - by what mechanism is that not allowed ? In the extent that the site in general does not consent to us all being human subjects in a study.
@teddyz The reason I don't want to reply to the author just yet , is that I believe my identity as nyxygirl could be ascertained . I hope this conversation ( that I started) is not causing undue worry! : (
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IF it is true that "Mayo Clinic Connect "posts" are visible to anyone who has the internet and views the Connect site --- What stops anyone from extracting a thread and analyzing it. I don't mean private conversations between two Mayo Connect members.
I don't really care if these discussions and posts about general PMR/GCA topics are public on the internet and can be analyzed. They are my personal experiences that I share with anyone that is interested.