I'm very confused. Is Mayo Connect considered to be "social media?" Was one the conversations about Kevzara posted on Mayo Connect analyzed as part of the study?

"In total, 21,844 conversations were extracted, of which 1001 filtered posts were manually analyzed. Of the total identifiable reporters (n=517), 90% (n=465) were from the US and mostly females (65%)."

If 21,844 conversations were extracted, I would like to know where all of the conversations came from? I think it would be great if our conversations on Mayo Connect were included.
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"✔️ Patient-Centered Validation: A particularly rewarding moment was when a PMR patient validated the insights we presented."

Who was this PMR patient? I would think at least a hundred PMR patients validating their insights would be more rewarding!!!

Considering there were many "Industry leaders and peers" and many rheumatologists it would seem that patients were under represented if there was only one patient.
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I didn't think the abstract was too earth shaking but maybe the technology is.

I have noticed that Google artificial intelligence sometimes uses information from forums like Mayo Connect.