@nyxygirl, mtr2601, @linda7, @johnbishop, and all... I'm late to the conversation, but as a PMR and GCA attached patient, I'm interested in catching up. I take 7.5 mg Methotrexate weekly, and 8 mg Prednisone daily. That's as far as my tapering has gone, I still have some symptoms but are tolerable and think I have the thinks boxed up as much as possible for now, with the lowest meds I can tolerate without issues.
I'll read back on our site and catch up... but I am not at all impressed with the AI trials I've been involved in albeit they are quite limited and unimpressive. I don't like being treated like every other patient in the list of my illness... or my doctor. I am not like you or any others with these diseases... as my body reacts it very own way to the illness, the meds, the treatments, my stress levels, my other meds and illnesses and stresses, on and on and on. AI doesn't take those particulars into account, at least I don't think so and saw no illustration that it does.
I'm not pleased to see the direction of our care, personally. Yes, I'm almost 78 years old. But, I've been through decades of horrible care and only this last decade have I found the medical community that most addresses my needs. Mayo mission is what I need. Not Mayo AI. So, I'll work to keep a mind available to be convinced, if/when I see it. I may simply decide to avoid any obvious changes... HMMM... not possible...ess
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