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Newly diagnosed and scared

MAC & Bronchiectasis | Last Active: Jan 5 1:30pm | Replies (41)

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@lorrie48

Like you, I was more concerned about the antibiotics than the infection itself. After first reacting with flu-like symptoms, I seem to have adapted ... except for the build-up of fatigue on Thursdays and Saturdays as I add the Wed and Fri doses each week. I've had some loss of appetite. My teeth haven't turned orange like I thought they would, but maybe the extra-whitening toothpaste and mouthwash have helped. I will, however, ask the pulmonologist next week about setting up an eye exam, since my eyes seem to be more tired, sensitive to glare, and difficult to focus on small print. All that could just be age, but ...

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Replies to "Like you, I was more concerned about the antibiotics than the infection itself. After first reacting..."

Yes things do change with age...but I'm not a fan of doctors attributing changes to age. I am 82 and my worse problem is the BE with constant mucus clearing and a low count of MAI.
Did you and did your pulmonologist suggest that you have a baseline eye and hearing test before going on the antibiotics? If so, that will possibly give you good information with the eye exam you are thinking of having. Are you on Medicare? With my being on Medicare I have been able to make my appointments without going through my PCP or Pulmonologist. I make the appointments directly.
Barbara

I was like you and to some degree still am more concerned about the medications than the disease. I was on all three. I also had flu like symptoms, fatigue, hot flashes and chills on and off all day, and worsened depression and anxiety. I feel like the hot flashes were from the medication interfering with my hormone replacement. I finally went off of them for several weeks but started going to the clinic at UAB and am now on two. I was taken off Rifampin.
This time I’m not having flu symptoms, hot flashes or chills. The depression, anxiety, and fatigue are still pretty bad. When I saw my dental hygienist a few weeks ago she said there was a stain on my teeth but she was able to get it off.
The first ID Dr. told me to have my eyes checked monthly but did’t feel it was necessary to have my hearing checked. I was having ear problems not that long ago and finally went to my CRNP. I told her about the hearing test and she said she wanted one done so I’m set up with my ENT to have one in a few weeks.
This whole thing is difficult.