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Cavitary MAC - what makes cavity shrink?
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (30)Comment receiving replies
Please forgive me for inserting a question about Phage therapy into this thread. I followed your earlier discussions to the point where you said you had a consultation invitation in April 2024. I searched for more from you after this date and I'm concerned to hear of your latest journey into the Big 3 +
If you would be so kind, and I do understand that you are in a whole other progression of concerns, but would you mind filling me in on what UZ Leuven has or doesn't have to offer us as far as hope for an alternative to the Big 3? As I write this, it occurs to me that perhaps one of the admission requirements might be "failed antibiotic treatment"... I am grateful for all that you have shared so far. And, I wish you continued strength, courage and hope in facing this Bx/NTM challenge
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@dispatchpat, it is okay. we can discuss any topic as long as it is related to treatment. I am taking cl, et and az daily and inhaled amikacin three times a week, not big 3.
UZ Leuven gave me a televisit. They were very honest about the phage therapy. It is still at experiment stage and there is no evidence that it can help MAC patients. So I did not go there in person. But as I heard, NYU, Mayo Clinic, Sandiago University and Pittsburg University are all making research on it. Maybe after 5 years, there will be a breakthrough. Antibiotics is still the best treatment so far, and within 10 years, as advised by my pulmonologist in NYU.