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Just diagnosed

Prostate Cancer | Last Active: 1 day ago | Replies (23)

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@hirejohn

Hi douglasmayo - It appears that we’re in a similar place. I’m 68, also in pretty good shape, diagnosed with 3+3=6 grade group 1 in four of nine cores a few months ago. PSA had been increasing slowly over eight years from 2 to 5 but curiously just dropped to under 4 just a week ago. Was definitely considering active surveillance notwithstanding a strong family history of prostate cancer until my Decipher score came back a few weeks ago at a very high .78. Also just got back a few days ago another genomic test which indicated that I apparently don’t have the gene mutations (BRCA 1 and 2 and others) which can pose a real concern for aggressive and recurring prostate cancer. I would recommend that you learn as much as you can about prostate cancer in general and about the Decipher test in particular and, at the same time, get two or even three opinions from highly regarded doctors of different disciplines (surgeon, radiologist, etc.) at cancer centers of excellence if possible. Having disparity between your clinical markers (psa, images and biopsy) and your genomic results (Deciper and others) and deciding on how much emphasis to place on your Decipher score can be very stressful and confusing but knowledge is power.
Best of luck as you begin your journey and don’t hesitate to reach out should you want to connect and share notes.

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Replies to "Hi douglasmayo - It appears that we’re in a similar place. I’m 68, also in pretty..."

I am also 68 , have Gleason 3+3 /6
PSA that is now 16 , 8/12 cores positive , went to Mayo post biopsy appointment and the Urologist young assistant was who went over results and she was in favor of active surveillance then surgeon came in and said historically this would have been surgically treated however younger Dr would surveil so he agree to monitor PSA for 3 months while I went to Florida for the winter and retest in April. Have you checked out proton guided radiation or other treatments ? Left that appointment more confused so will have to findmore info . I’m going to UFlorida proton guided radiation center in Jacksonville for a tour and will reach out to Mayo about Decipher test and others which weren’t offered .
Still trying to find a process in choosing the best treatment . Any thoughts ?