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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
Brain Tumor | Last Active: 5 hours ago | Replies (533)Comment receiving replies
I had a consultation last week. The doc described the tumor as schwannoma, though not specifically an acoustic neuroma. He recommended surgery or radiation. The MRI was the best test available. A talk with another doc happens on Monday.
On this forum people said they were told that a 2% chance of some other tumor happening from radiation. I asked about it; he said it's a pretty low dose, and the chance is about 2/10ths of 1%.
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Hi..My name is Rose and I was diagnosed in 2004 with a schwannoma on the left side of my face. I was told it was a facial neuroma and very rare. I was sent to a specialist in Arizona, where I was living at the time. I had 10 radiation treatments and have been monitored with MRI every 6 months. The surgery for a facial neuroma is debilitating. I will lose all control of face muscles. When having MRI 3 years ago they discovered 2 meningioma tumors, one in frontal lobe and one at base of my brain. I live in Connecticut now and started seeing only Dr at the time who worked with this type of tumor in CT at Yale, the facial neuroma - schwannoma. I'm almost 80 now and ended up going to see another specialist in Boston Mass. General. He did tell me that the radiation could cause cancer, I was never informed of that but so far so good! The radiation was to help stop the growth of tumor and it worked until 5years ago. It is now growing very slowly. It is a wait and see thing!! I think it would be best to see a Dr who will tell you exactly what type of tumor you have. From my understanding the treatment for acoustic or facial tumor are very different.