https://ym.care/bbw2
The Link above is from a recent Yale Based Long Covid Study on "Internal Tremors and Vibrations, shaking and trembling movements."
In an attempt to be helpful, I have gained much insight into this when I found myself searching for others who might have experienced what I have endured for over 3 years. So, it's quite "rare" in and of itself." But here we are on this Mayo forum seeking support, answers and remedies. In an attempt to be as succinct as possible I will relate my personal story, but let me begin with the sigh of relief I felt in finding this article which was published in August of 2024. We are being heard! (Initial reactions from doctors, family and friends were deer in the headlights response. I was crazy!) I contracted a mild case of covid in March of 2021. I felt an almost imperceptible buzzing in my lower extremities and questioned it. I recovered quickly and forgot about what I'd thought I imagined. I work in the medical profession and was advised to take the vaccine despite natural immunity at this point. But we knew so little at the time. It was after I took the booster less than a year after my second vaccine that the leg vibrations began 24/7. I found very little on the malady aside from a celebrity who committed suicide (her symptoms were quite severe and not just vibrations) and Senator Tim Kaine (I encourage you to look up is own personal story and crusade) who described it as though he was dipped in Alka-Seltzer. (I called mine a fizzy drink!) I did not realise until finding this forum on the Mayo Connect, how many in fact have similar stories. In July of 2023 I contracted a severe case of Covid entailing just about every symptom one might experience from anosmia to severe fatigue. Worse, the leg vibrations exacerbated and have not let up save for occasionally. I continued to feel poorly and began exp bilateral shin pain and left knee pain (old injury MCL/ACL repair) which was thought to be septic. (I was also experiencing night sweats, fevers, tachycardia and malaise.) After hours in the ER and a negative aspiration I was sent home but with a CRP of 90 which was not addressed. I went to my PCP requesting and ESR and more blood work which she did. She sent me back to the ER where I was admitted to the Rheumatology service for 9 days. Diagnosis of pseudo gout and PMR. PMR is viral driven. Inflammation is at the crux of most illness. Endothelial dysfunction is now recognised as a central factor in covid 19 progression and long covid development. I am fortunate in that my Rheumy is 100 percent behind me. There are still many doctors who have not crossed over, but the research is out there and the proof is all the Long Covid clinics cropping up everywhere. We are NOT crazy. This site is for us so we can share and learn how to find our way to better health if not a cure. My legs are painful at times, partly this is PMR but still, all viral (covid) driven. I was on prednisone for a year and my leg/body aches gradually increased soon after I stopped. I'm now on Hydroxychloroquine which takes about 3 months to kick in. Still waiting and back on a low dose of prednisone. The leg vibrations continue however, which are at times more severe than other times. It is night time that is the worst, and now some element of restless leg syndrome. What my body has experienced is beyond bizarre. It is like an entity moving through me and I experience some very strange pains and sensations which can be difficult to quantify at times to be honest.
I'm about to begin a trial of Low Dose Naltrexone now being used "off-lable" for a sundry of maladies and now Long Covid symptoms. It is well tolerated and has few side effects. (LDN is addressed in the link above from the Yale Study.) I have an appointment in a Long Covid clinic which I have waited 5 months. I will pay out of pocket. My next move is Functional Medicine and or Ayurvedic Medicine. I would encourage all to do their own research and find a medical community that will support you in your endeavour towards improving health. The answers are coming, finally. From the bottom of my heart I wish you all well in your journey.