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Small Fiber Neuropathy and Face?

Neuropathy | Last Active: 6 days ago | Replies (8)

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@fija1001

Hi Joan. When u search numb face/loss of feeling in face ALOT of stuff comes up
On Reddit under anxiety. That’s why I had thought oh this could be it. Because I had had social anxiety for 20 years and in my teens suffered very badly and actually had a few panic attacks. But like I said it hasn’t gone away some months later now. I say “numb” but if I put cold/hot water on my face I can feel it the sensation is just much less. So it’s more desensitized mostly in chin but also lip nose cheek up to ear. But yes I will Mention auto immune disease thank you.

I recently came across trigeminal neuropathy which from what I read is trigeminal neuralgia like
But without the pain. I have no pain but my Loss of feeling in my face follows those same nerve branches from my chin to cheek to nose are all on that nerve branch. So I lm going to mention that to them as well. Also on a facebook forum I mentioned my symptoms and a couple people comment “I had similar symptoms” and they both had SFN Small fiber neuropathy. Unsure what that is but it looked to be just damaged nerves for whatever reason. I’m very hopeful for a good diagnosis u search numb chin on google and the results are not friendly. But from what I’ve read the fact that my loss of sensation in my cheek and nose points towards things that’s might not be AS bad. I will defiantly update in hopeful to get into a neurologist sooner than March but they all seem so booked!

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Replies to "Hi Joan. When u search numb face/loss of feeling in face ALOT of stuff comes up..."

I have numbness/little knives in my mouth…….feels like wearing dentures that zap me. Neurologist says Atypical Trigeminal Neuralgia, but after unsuccessful Trigeminal Nerve Blocks and SPG blocks, he’s told me to go to pain management……he can’t figure it out. I also have neuropathy in my feet, and when they get worse, the mouth gets worse……the docs think I’m nuts! This is so challenging; just putting up with the pain and not knowing what to do about it.