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Small Fiber Neuropathy and Face?

Neuropathy | Last Active: Jan 12 8:25am | Replies (11)

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Hi Joan. When u search numb face/loss of feeling in face ALOT of stuff comes up
On Reddit under anxiety. That’s why I had thought oh this could be it. Because I had had social anxiety for 20 years and in my teens suffered very badly and actually had a few panic attacks. But like I said it hasn’t gone away some months later now. I say “numb” but if I put cold/hot water on my face I can feel it the sensation is just much less. So it’s more desensitized mostly in chin but also lip nose cheek up to ear. But yes I will Mention auto immune disease thank you.

I recently came across trigeminal neuropathy which from what I read is trigeminal neuralgia like
But without the pain. I have no pain but my Loss of feeling in my face follows those same nerve branches from my chin to cheek to nose are all on that nerve branch. So I lm going to mention that to them as well. Also on a facebook forum I mentioned my symptoms and a couple people comment “I had similar symptoms” and they both had SFN Small fiber neuropathy. Unsure what that is but it looked to be just damaged nerves for whatever reason. I’m very hopeful for a good diagnosis u search numb chin on google and the results are not friendly. But from what I’ve read the fact that my loss of sensation in my cheek and nose points towards things that’s might not be AS bad. I will defiantly update in hopeful to get into a neurologist sooner than March but they all seem so booked!

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Replies to "Hi Joan. When u search numb face/loss of feeling in face ALOT of stuff comes up..."

I have numbness/little knives in my mouth…….feels like wearing dentures that zap me. Neurologist says Atypical Trigeminal Neuralgia, but after unsuccessful Trigeminal Nerve Blocks and SPG blocks, he’s told me to go to pain management……he can’t figure it out. I also have neuropathy in my feet, and when they get worse, the mouth gets worse……the docs think I’m nuts! This is so challenging; just putting up with the pain and not knowing what to do about it.

@fija1001 Hello there. I'm not sure if you or anyone else in the feed has gotten answers, but I wanted to attempt to help. I have anxiety as well and I have been hospitalized for stroke like symptoms. The doctors just brushed me off and said I was faking it, but I absolutely wasn't. I did my own research and discovered that Functional Neurological Disorder is a disorder that is induced by many things, stress and anxiety being among them. I have been diagnosed with that as well as Pseudotumor Cerebri, Papilledema, and a few other things. I'm now going deaf in my right ear, my face is going numb to light touch and my tongue is going numb in spots and I'm having trouble tasting and smelling too (not from my COVID). I hope you have or find the answers you need and I hope my story and experience help you and others. Wishing you all the best.