← Return to My hyperparathyroidism's worsening it seems. Surgery ahead?

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@healednow

Hi, I was just reading the parathyroid sites and ran across your post from May of 2024.
I thought I would weigh in.

I’m a 68 year old female who’s always been young for my age in terms of fitness.
About 2011, my hair started thinning on top and I couldn’t sing anymore. I grew these knobs on my fingers at the joints, had a bone scan marking osteoporosis and an abdominal scan showing lots of kidney stones. What???
I was going through stress of losing my mom and 3 siblings during that time and taking care of each of their estates and blamed stress for my health problems.
I had an inability to concentrate or remember things. I couldn’t prioritize, I now had insomnia and high blood pressure and would get horribly sharp cramps in my thighs. My face started breaking out, I was exhausted always and I know there are more symptoms but as you can see, I was falling apart.

Anyway, I went to 4 docs in Vancouver wa where I live. A nurse practitioner, an endochronolgist, a cardiologist and an internist. They ran tests for 1.5 years without a diagnosis.
I finally took
It into my own hands and with my lab results and symptoms wrote to Dr. Norman asking for his opinion. He returned my message confirming what I suspected. I had read every word on his site regarding hyperparathyroidism and was very informed because of that.
He could tell instantly that’s what I had and my docs in town, couldn’t, after a year and a half of tests.

I ended up going to see Dr. Deva Boone in Scottsdale Arizona. She was dr. Norman’s top surgeon for 8 years and then opened her own place. The flight was much shorter than going to Tampa.

October 25, I had the surgery, it was out patient 9:30 am and released about 1:00. Medicare pays. She removed a 3/4 inch tumor on one of my glands annd gave me an poloroid of it sitting on a ruler. She did check all 4 glands. My blood calcium instantly reduced to 9.2 Also, my THS number instantly went down from 81 to 20. The surgery took 30 minutes, max, but doing a paper work and then post surgery recovery took the remaining time. They do put you under. My calcium number had been dancing around 10.4 to 11.9 since 2005 and none of my doctors were worried about it! So I wasn’t either.
I can concentrate now, I’m not exhausted, my fingernails are growing like mad, I can sing again, cramps have stopped and I’m not forgetful anymore. I’m taking calcium daily and I0 months time, my bones will restrengthen. My blood pressure and Cholesteral went down.

They say the longer you have the condition the more it destroys your organs, one by one. (both my kidney and liver lab tests were high)
Please take this very seriously. Your life may depend on it and I am suddenly free of so many symptoms.

This is long, I know, but I am trying to help as many people as I can so they don’t have this wrecking their body for years.

Best regards and good luck!

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Replies to "Hi, I was just reading the parathyroid sites and ran across your post from May of..."

Hello @healednow and welcome to Mayo Connect. I appreciate you sharing your journey with hyperparathyroidism. The fact that you advocated for yourself and kept searching for answers and treatment is remarkable! Persistence is often the key to getting the needed medical help. How great that you are feeling so much better now.

Before your surgery, did you have scans that revealed the tumor on your parathyroid gland?

@healednow I also want to welcome you to Mayo Clinic Connect. I’m so happy for your success story about your hyperparathyroidism journey! Do you have adequate follow up moving forward?

If Dr. Boone was Dr. Normans top surgeon you know you were in great hands! Glad you researched top surgeons before letting some hack butcher you. My wife had Dr. Michell at Tampa do her surgery. Best surgery she ever experienced! These people are awesome!