← Return to Autoimmune Hepatitis and remission?
DiscussionAutoimmune Hepatitis and remission?
Autoimmune Diseases | Last Active: 15 hours ago | Replies (12)Comment receiving replies
Replies to "Hi Nellellen. Thank you for sharing your experiences with autoimmune hepatitis. This is really helpful. I..."
Good morning,
Other than extensive fatigue, I had no other symptoms associated with the AH. Sjogren's was and is another story. If I'm remembering correctly, the liver does regenerate itself. My liver enzymes have been in the normal range for a very long time. Although there is debate about this, my oncologist believed the aziaprothine was A contributor to the development of cancer. Emphasis on A...meaning one. It was eleven years between my diagnosis of AH and NHlymphoma. That's eleven years of aziathropine. But, in my case, the greatest contributor to the cancer was the Sjögren's syndrome. Approximately 7-10% of those with SS develop lymphoma...and both my Dad and I developed both.
Remembering back, I think I was taken off the aziprothine once to see if the liver enzymes might remain normal, at the time it didn't work. You might consider doing that after some time...I'm not a doctor, but eventually the liver was not the subject of the autoimmune attack. Also, if you haven't heard this, this is very good advice. Don't get live vaccines. For whatever reason, live vaccines can initiate an autoimmune response. Good luck. We're all different, but it's great to share with people facing the same rare disease...there is hope.
A few years ago, I woke up one morning, and I had gone yellow. I really should have known that I was unwell as I had been throwing up quite randomly for a while. My doctor said I should go to hospital, and I didn't want to but in the end, I was admitted for about a week. My relevant bloods were sky high, and looking back I'm surprised I survived. I didn't get on with the doctor in the hospital. He kept giving me different diagnoses and was quite unpleasant. The whole hospital experience was funny in hindsight. They were short-staffed!! one night I woke up to find another patient snuggling up to me in bed! Whoa!! I called the nurse who led the patient back to her bed, and lo and behold, a few minutes later she was back in my bed. Then a drug addict came in, (five bed room) and when everyone was asleep, she went around stealing whatever she could get from other patients. We had to call the police in the morning and she was taken away. Then another night, there was a full-blown fight in the corridor.....all in all like a battle zone. eventually, I moved to the care of another hospital in another town, and its been fine. I have just been pulled off Azathioprine, because my white blood count is abnormal. I have some liver fibrosis, but everything has generally improved, and I think I am being well monitored. I never touch alcohol since, as I think that would aggravate everything. I know azathioprine can affect white count, but generally I am well. Funnily enough I seem to have a few additional conditions alongside this one, and I was convinced I had sjrogens, but test said No. I understand that lymphoma can be a by-product of this illness, so I keep an eye on that. Stay well all!