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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 days ago | Replies (434)

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@laurenseavertson

My pain wasn't too severe, for a long time. I do not have any history of addiction, or abuse. Just distaste or narcotics, as they give me horrible constipation issues. I am now on Oxycodone 5 mg three times a day. & was given patches of Buprenorphine 7.5 mg . However, the patches gave me severe gas pains & more constipation. tried twice, but gave up. I now have such severe pain, i can't sit up. I am unable to function. I am supposed to get a right shoulder ablation next week & need to talk to someone in pain management, as i feel like i am being knifed in low back, sacral area. Pain management telling me i can't see NP, same day i get ablation. Tried telling them, that i can't get out of bed, let alone, additional appointments. They R telling me that this is Medicare dictating the rules. Do u know what the DEA allows PM docs to prescribe? I am allergic to Morphine, but Dilaudid works. How many months of agonizing pain, does it take, before i can get adequate pain relief?? Ridiculous that we have to go to the ER. ER doctor, last time, said i was drug seeking!! Severe, constant pain, started about 6 weeks ago. Before this, i only had episodes of horrible pain, which made me go to the ER for 2 to 3 days, on large doses of Fentanyl My AA pain moves around. Don't think most NP, even in pain management, know much about Arachnoiditis. This isn't pain compatible with living. See new pain doc, on the 9th, about pain pump

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Replies to "My pain wasn't too severe, for a long time. I do not have any history of..."

Hi— Archie here-your msg was very interesting. Constipation is a serious issue at one time or another for us all. Especially if you are taking oral opioids. A simple solution can be Metamucil taken as directed. Another solution (RX only) for patients with more severe problems is a liquid called LACTULOSE. 30-60 ml/ day and the results are a return to natural function and can be marvelous. This is a daily dosage. It is a well-known solution among gastroenterologists, so now you know.
Re “What can PainMed Dr’s prescribe,” this surely varies by state, but in intrathecal pumps, for example, Dilaudid is often n preferred. Morphine can have more side effects like flushing, itching, stomach upset and so is not as satisfactory for many. Really there is no “medication” that PM folks cannot prescribe, but the patient and symptoms must fit the profile. Hence my recommendation that you keep a DIARY— make it obvious that you need help, and at what level. The choice of meds will vary, but the goal is always the comfort of the patient within the law and ethical practice of medicine. Also, please remember, often in the PM world, meds of the benzodiazepine class MUST BE PRESCRIBED BY A PSYCHIATRIST.Hope this helps Be well, Archie